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This is Tathiana. I wanted to give an update about our family and, especially, about Isaac.
In a previous update I mentioned that Isaac’s psychological test scores over the past years show he no longer runs the risk of Asperger’s. He has, however, continued with his weekly therapy and Speech Therapy twice weekly. He has shown great improvement in his language development, he is even delving more into his English! He does still has a hard time organizing facts with time in his communication.
A few weeks ago, Isaac had a hard time at a birthday party with the boys from his school. It was a hard time for me as a mother. During the party, I realized that Isaac did not actual say anything as he ran around for 3 hours. I attempted to be a go-between for he and his friends, trying to help him converse with me so he would talk to his friends. Alas, he resisted. It seemed as if he wanted to talk, but wouldn’t allow himself. Isaac would even be in the middle of the ruckus, but then would distance himself when he felt unsure. In the car heading back home, I let my frustration get the best of me and scolded him saying that I didn’t see why he went to these get-togethers if he chose to not talk with his friends. I said that the other kids wanted to hear what he has to say, that he is a smart boy and able to communicate. I asked him if he talks at school and he said, resolutely, that he does not talk at school, only at other places.
Immediately my anxiety and fears ran rampant as I thought about next year at elementary school: new friends, new teachers, new situations, etc. If he doesn't talk at the pre-school that he loves, it will surely be worse at a new and larger school.
At home that same day, we all calmed down and talked as a family. Isaac said, “can’t think of words” and that sometimes he doesn’t understand what the other kids are doing because “my head is different.” At the end of our conversation, in the most vulnerable and clear way in his five years he opened his heart and explained (in his own way) that he feels pressured by us to speak and that we always want him to do the things he is afraid of doing. My heart shattered into a thousand pieces. Jon and I asked him to forgive us and later that night we asked God to help us because we don’t know how to love our little boy like God loves him.
That very night, the most extraordinary little boy I know forgave us.
Yet again, we need you to remember us in your prayers. Pray for us to trust in God’s perfect plan for Isaac’s life. Also, pray that we continue to have the financial means to continue his therapies and a new school next year, for both Isaac and a part-time pre-school for Sara, who is showing signs of being behind in her language development.